I know it's been awhile. This blog is always on my mind. I have tons of links annd stuff to post, but it's been a challenge to unjumble my thoughts and jusy sit down and write.

Moving and all the compromise and changes that go with it have been hard. The peeing thing is still a problem. I'm going to talk to my neurologist next week and get his opinion about living on my own. And about going back to PT Elite

I wish my family supported me more in my quest to be independent, but I'm going to do it anyway.

Well, out of the nursing home, but not where I want to be yet....baby steps..

What will go on in 2012? I don't know, but --

BRING IT ON!

Disabled and looking for a job? That is not yet me, but I've seen a lot of TV ads for Think Beyon the Label and this campaign could help disabled people get hired.

Too bad the economy sucks right now, and even able-bodied people can't get work.

<a href="http://www.ted.com/talks/caroline_casey_looking_past_limits.html">Watch this video of Caroline Casey</a>
This gal is funny!

I think I might talk to the ombudsmen. I now have a Sunday bedtime, feel like 6 o'clock is too late to ever go see a friend or have someone visit. My home teachers came by Sunday at 6 pm, and man, did my caregiver freak about how late it was. They left at a quarter to 7. That was late? Obiously, there's a communication problem I don't know, but I resent my restricted hoours.

I have never felt desirable with the chair. I don't feel worthy of love sometimes.

My dad told me recently that no one would give up their entire life for me.

I guess I am -- to society, but I refuse to believe I'm not worth anybody's sacrifice. Everybody in a relationship gives and recieves sacrifices. Why am I not worthy?

Read this blog post.

"Disabled sexuality is virtually erased in our society.  People with disabilities are, at best, considered nonsexual, entirely lacking in sexual identity.  At worst, we are seen as perverts merely for having sexual desires.  And we are, above all, undesirable. The aesthetic of my power chair reflects this–why bother make something sexy when the person using it isn’t going to be having sex?"

One of the CNAs in the nursing home was going to start a zumba class, but life got in the way and it didn't happen.

But it can  be modified for sitting. Check this video out:
introduction to zumba gold

And

I want to learn this one (love the song);

Watch this!

This Thankgiving day I feel so thankful for the people, places, and things that help my quality of life.

Today I read a blog from a person with EDS, which is a totally different disability than  have, but also similiar. Every person with a disabilty can learn frim anoher person with physical limitations, no matter the disabilty, and I learned from this.

It also resenated with me. When I first got my wheelchair, I could still walk, but walking was hard. I really did not want to use it, but I did when I went to college. And my life changed. I no longer had to worry about walking or using so much energy. It ended up improving my quality of life.

So don't be afraid to use help. It may help your quality of life.

I am not judgementally impaired! It got fixed. Thank goodnss!