WHEELINGWOMAN.COM

judgemental impairment

Today I signed a paper about my care plan.

I signed it because I felt presured.. The liscening lady showed up today out of the blue.

But it said in the behvior section I was judgementally impaired. WTH? I was so upset I circled it.

And I told my parents.

They. Are. Pissed.

I feel small.

Tomorrow should be interesting.

drug problems

Today has been interesting. I've been takin a mineral suppliment called slo-magnesium to help with the spasms. I took it in the nursing home, I guess my doctor's order ran out and I was taking it illegally. I need an order for everything here, even vitamins and other OTC's. Yes, it's stupid, but the law .

We're trying to fix it.

Use DrugDigest to look up and learn about any drug.

Advocate

I found this site when a fellow job clubber needed help getting SSDI.

http://advocacyforpatients.org/

I want the 'Know Your Rights' handbook

A reluctant leader


I was having this major problem in the nursing home. I ended up hosting and by default, leading the job club I've been in the last couple of years. At first, I was happy to host job club, to see the boys in job club until about a month later, when the job counselors, the REAL leaders stopped coming.

6 months, a year, two. Nobody called or emailed from the corporation. It was all me. I cleared my schedule every week for our scheduled shooting the breeze, and it was OK, but I felt like I was wasting people's time. And wasting mine. Especially when we lost a guy.

I did not deal with it well. The ending, that is. I tried to end it well. But the boys  wouldn’t let me. Try changing a schedule with a person with autism.

So, my mom called the corporation...and argued with the woman in charge...I did get out of it, but I'm not going to job club again.

Oh well.


diapers

One of the things I really hate about the situation I am in is that I have to wear a diaper. Yes, not only is this embarassing, but I feel like a 2 yearold. It's itchy and smelly – not to mention looks like I have a giant package under my clothes, if you know what I mean. And I feel dirty, all the time peeing in your pants sucks. Especially when it leaks and reaches my inner thigh. I'm itching there,  andall over the edges of my diaper. And I smell. I don't think I'll find a guy like this.


I think it's time for a catheter.


my internet crapped out

My  internet died for a good part of the weekend, but my lj is caught up, so here comes my back-dated entries because I still want to finish out every day in   November, so here we go.

second class citizen

Well, my gynecologist trip was a flop. They wouldn't lift me. My mom even called to warn them I was coming, and they said they would help.


Now, I'm a virgin. Personal choice. Doesn't mean I can't have sex. Or will have sex one day.


Yet, she refused to check me.


And I just sat there, holding back tears of anger, letting her de-sexualize me and deny me medical care, which is against the law.


I'm so mad at the doctor and at myself for letting people treat me as a second class citizen.


How can I change that?


no words

I am just  angry.











gyno

Tomorrow is take 2 for the gyno. Missed cvan.  MRI I  got was clean nerve- wise, but showed a pesky cyst on my ovary.

Haven't been to a gyno in years. Yep,medicaid doesn't cover it.

And I hate being carried onto high tables.

I hate not being able to transfer

I take drugs.

Yes, everyone, I am a druggie.

I don't really like drugs, but once the spasms got out of control, I had no choice. I had to control them.

Or cut off my legs.

At first, I was devestated. So many drugs. I was in this fog. I couldn't think. I couldn;t even. I hated it.

I would try to skip my drugs in the early, days, but my legs would stiffen up or even start spasming. I've since lessened my drugs, but I still use them to control my spasms.

Some people would contend that I am a bad person because of that.

I don't think so. This isn't about drugs.

Its about treatment. Its about the quality nof my life.

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Recent Posts

  1. risk
    Monday, January 23, 2012
  2. Progress
    Sunday, January 01, 2012
  3. Think Beyond the Label
    Wednesday, November 30, 2011
  4. Looking Past Limits
    Tuesday, November 29, 2011
  5. Doesn't my happiness matter too?
    Monday, November 28, 2011
  6. I need to remember, wheelchairs ARE sexy
    Sunday, November 27, 2011
  7. Zumba gold
    Saturday, November 26, 2011
  8. A cool chair
    Friday, November 25, 2011
  9. I am thankful for my wheelchair
    Thursday, November 24, 2011
  10. not impaired
    Wednesday, November 23, 2011

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